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Registry News

Medicare data in the West Virginia Alzheimer's Disease Registry

  • Medicare data from 26,000 West Virginia Medicare beneficiaries living with Alzheimer's Disease have been added to the West Virginia Alzheimer's Disease Registry.
  • This brings the West Virginia Alzheimer's Disease Registry total to over 28,000 entries.
  • The additional data go a long way to accounting for the 36,000 West Virginians the Alzheimer's Association estimates have Alzheimer's Disease or a related dementia.

New Oracle database houses the West Virginia Alzheimer's Disease Registry

  • The  West Virginia Alzheimer's Disease Registry is now housed in a new, secure Oracle database.
  • The new Oracle database brings together a new data entry portal and a repository for all of the data from a number of disparate sources.

Testing the West Virginia Alzheimer's Disease Registry

  • The West Virginia Alzheimer's Disease Registry was tested by a small number of physician specialists to see if data could be collected easily in an office setting and if the data we collected were useful.
  • Data collection in a physician's office setting took less than ten minutes per patient and was reported to be relatively simple and straightforward.
  • The data we collected were consistent with many national trends including age, gender, education, testing, diagnosis, and treatment of Alzheimer's patients but also provided some unique insights into Alzheimer's Disease in West Virginia.
  • West Virginia patients are younger than those in other parts of the country, they tend to live at home where they are looked after by their spouse or another family member and they suffer from a number of other medical conditions including high blood pressure, high cholesterol levels, and diabetes.
  • The Registry will be able to tell physicians and other health care providers, their patients, local, regional and state decision makers, and the public about the medical, economic and social impact of Alzheimer's Disease in West Virginia.
  • The Registry is an important tool in understanding Alzheimer's disease and related dementias in West Virginia. It may prove vital in winning the battle against this disease.